Browse Month

October 2017

patient advocacy in an age of social media

 

Social media platforms are an incredibly powerful tool and have been the main empowerment tool for patients. How is social media disrupting traditional patient advocacy and what must pharma do to stay ahead?

 

How have social media platforms changed traditional patient advocacy?

  • Social media allows for global networking & making connections worldwide is easier
  • Social media makes it easier to get message across instantaneously – real-time communication
  • Social media makes it easier for patient advocates to network or interact with other patients
  • Social media makes it easier to meet and reach new communities/patients or consumers
  • Social media allows for remote patient advocating; establishing and explaining your position not only with policymakers but with the public
  • Social media allows patient advocates to share clinical trial results and clinical research findings
  • Social media platforms are free and are cost-effective communication tools

 

How can you identify an influential patient advocate online?

  • Patient advocates engage in Tweet Chats – discussing important topics relevant to their disease areas
  • Patient advocates interact with online healthcare professionals
  • Patient advocates facilitate information creation and sharing
  • Patient advocates follow proper hashtags for disease topics
  • Patient advocates are bloggers that share their experiences

 

What are some of the tools out there for patient advocacy?

 

 

  • Tweet chats take place on Twitter platform and allow for conversations to take place around a keyword or hashtag. For example #BCSM (breast cancer social media)

 

Which social media platforms are best for patient advocacy?

  • Patients are meeting on different social platforms.
  • They join a FB group.
  • They recount their own story by Instagram.
  • They meet and share information and experiences on Twitter through tweet chats.
  • They blog their illness.

 

How can pharma use social media to embrace this movement and improve the patient experience?

  • Pharma needs to join in the conversation.
  • By engaging on social forums, pharma may better learn what questions patients are asking and what their real needs are.